This morning we went to the Pediatric Ortho and it looks like we are going to move forward with the surgeries to remove Nathan's extra digits. Due to the fact that he is older and bigger now, the Surgeon wants to do one digit at a time. Initially, we were going to do both hands, then a few months later do both feet. But, because he'll be in casts, the Dr doesn't want to "cripple him up" While I understand this, I am nervous about putting Nathan to sleep 4 separate times. I'll be a wreck. I'm supposed to call the scheduler on Tuesday. I don't know how quick they'll get this started, but very soon, Nathan will have one less toe......awwww.
I do feel good about this. I've been anticipating this since he was born. We're ready and I'm prepared to play nurse. :)
On another note, the 30th of this month The Magic Foundation is (http://www.magicfoundation.org) launching a "Children's Growth Awareness Day" So many people think being growth hormone deficient only effects your size, but in reality it effects your health in many ways. We need GH to grow our organs as well! Not having GH therapy can lead to all sorts of health problems. Catching and treating GHD early is imperative! I'm proud of this of course. We didn't even think of being GHD as a possibility with Nathan. We just thought him having EvC was the culprit to him not growing. I thank our geneticist for finding a study of some EvC children who had turned out GHD and he urged us to get Nathan tested. So thankful we did!
Nathan still hates his shots everynight (I would too!) But he's certainly getting better at taking them. He's especially calm when he wears his batman costume. I think he thinks he actually IS batman :)
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