Wednesday, October 5, 2011

2nd opinions

Last night I talked with my cousin who is a Dr, and this morning I talked with Nathan's pediatrician.  Both gave me very good reasons as to why Nate's Ortho probably wants to do 4 separate surgeries.  They also made me feel a bit more comfortable with anesthesia.  Neither of them thought it was a bad idea for me to have an opinion myself and to share that with the Ortho.

My opinion is obviously based on discussions I have had with my network of other EvCers and parents.  The experts! None of them understand 4 surgeries, and none of them have ever been casted after.  Usually just a bandage that came off within a week.  Also, my EvC parents ensure me that healing is no big deal.  They've all urged me to either express my concerns and insist on 2 surgeries, or get a 2nd opinion.

While talking with the Ped this morning, he thinks it would be a great idea to get a second opinion.  He views Nate's Ortho as very conservative (not a bad thing) and thinks maybe seeing a more aggressive Ortho could give us some perspective.  Then, we can make a decision that we feel good about rather than just going with the flow like I kind of feel like we are doing now.   So, his nurse is locating another Ortho that takes our insurance and is calling me back with an appointment.  :)

I feel so much better after talking with both of these men who I respect.  I appreciated the Pediatrician listening to my views and the views of the other mothers, and considering them just as valuable as the professionals.

Here's a great picture of Nathan's hands and feet...also of how stinking adorable he is :)  The child has no clue that he's a little thing, just FULL of himself!!!

3 comments:

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  2. I stumbled on to your page while doing a search of EvC - my son (6 months old) was diagnosed with this condition although, the genetics tests came back negative (our geneticist still feels we should go with it!).

    I just wanted to say that your son looks excellent! Best of luck with the ongoing growth hormone injections and I'm sure by now the surgeries for the extra digits are complete.

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  3. Oh goodness, thank you so much! I need to update this blog. My son has had both surgeries and is almost 5 now! It's been way too long since I have written and your comment has inspired me to do just that. The reason I started this blog was because I remembered when my son was first diagnosed there was not much online, and definitely no positive outcomes. I wanted our to be that source! If you are on facebook, there is a FB page for EvCer's. And, my Email is mdmartin25@hotail.com. I'd love to answer any questions you may have.

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